Contact UsCenter for Rare Disease Therapies
535 Watson Drive
Claremont, CA 91711 Phone: (909) 607-0120
March 17, 2014
This year Rare Disease Day at KGI was devoted to an exploration of the issues surrounding the development of new drugs to treat rare diseases. Pricing controversies, the need to get physicians more involved in clinical trial recruitment, and the role of parents as chief advocates and de facto lobbyists were among the topics covered by a roster of highly regarded individual speakers and panelists.
January 31, 2014
This year Rare Disease Day at KGI is dedicated to raising awareness of orphan drugs for rare diseases-something which is greatly needed according to Dr. Ian Phillips, director of KGI's Center for Rare Disease Therapies.
January 13, 2014
Dr. Ian Phillips, director of KGI's Center for Rare Disease Therapies and Norris Professor of Applied Life Sciences, discusses some of the consequences of the Orphan Drug Act of 1983 and the future of orphan drug development on Radio Health Journal.
October 18, 2013
Dr. Ian Phillips, Norris Professor of Applied Life Sciences and director of the Center for Rare Disease Therapies at KGI, spoke to an audience of 500 patient advocates at the Global Genes | RARE Project's 2nd Annual Patient Advocacy Summit in Newport Beach, California.
June 11, 2012
The world of rare disease research will get a new forum to exchange ideas and report discoveries thanks to the publication of a new e-journal to be titled "The Journal of Rare Disorders."
April 10, 2012
KGI student Kate Brown wins a grant from the Social Security Administration to help fast-track disability benefits to Fatal Familial Insomnia patients.
February 27, 2012
Dr. Ian Phillips, Norris Professor of Life Sciences and Director of the Center for Rare Disease Therapies, is set to speak at two upcoming conferences this March: the Rare Disease Leader's Forum, in San Francisco and the Stem Cells for Drug Developers conference in Boston.
November 22, 2011
While this year's Team Masters Projects (TMPs) at KGI cover a wide spectrum of topics, four TMPs focus specifically on rare diseases, reflecting an increasing interest among pharmaceutical companies in exploring new business models for developing medicines to treat rare conditions—also known as "orphan drugs."
November 10, 2011
Professor Ian Phillips will lead a workshop on developing rare disease therapies at the 2nd World Orphan Drug Summit on November 15 in Boston, Massachusetts.
August 15, 2011
Thanks to a workshop co-sponsored by KGI's Center of Rare Disease Therapies, NATCO Pharma Ltd has become the first Indian company to receive approval from the U.S. Food and Drug Administration (FDA) for an Orphan Drug designation application.