14th Annual Rare Disease Day - Keck Graduate Institute March 5, 2021, 12:00 pm Skip to main content
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Hello, all! Come join the KGI community to help raise awareness for rare disorders at the NORD club’s 14th Annual Rare Disease Day. Collaborate, discuss, and learn about “Integrating Telehealth in Rare Disease”. Agenda items include:

  • Speakers from the rare disease community
    • Dr. Stephanie DiTroia, PhD — The Broad Institute of MIT and Harvard
    • Dr. Xiaowu Gai, PhD — Children’s Hospital Los Angeles
    • Dr. Bridget Ann Fernandez, MD, MS, FRCPC (Medical Genetics), FCCMG, FACMG — Children’s Hospital Los Angeles
  • Patient advocacy panel
    • Dr. Ben Calvert, volunteer at Cystic Fibrosis Foundation
    • The Sturge-Weber Foundation
    • Osteogenesis Imperfecta Foundation
  • Poster competition
  • Trivia Games to win fun prizes

This event is free and open to the public, so everyone is welcome! Please complete the registration form for the Zoom link. The first 35 KGI students to register will receive conference gifts! If you have any questions, please contact ekeomanee19@students.kgi.edu. We look forward to seeing you all! 

Link to register: https://forms.gle/3CUa1eHdFgCdXjzA8


Important Links for the Event: 

Patient Advocacy Organization Links:


Rare Disease Day Events: https://www.rarediseaseday.org/

NORD website: https://rarediseases.org/

NORD Telehealth Principles: https://rarediseases.org/advocate/policy-priorities/nord-telehealth-principles/


Important Announcements and Reminders Before the Event:


Rare Disease Club-NORD Student Chapter

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