KGI Students for Rare – NORD: 2nd General Meeting

Join Students for Rare for our 2nd club meeting on 10/22, from 12:00 p.m. – 1:00 p.m. over Zoom!

This is our very first speaker event of the semester, and we’re excited for you to join us! We will be hearing from Tracy VanHoutan, who will share his family’s journey with Batten Disease, followed by a brief Q&A. You can find out more about Tracy’s role as a rare disease advocate here: https://www.noahshope.com/

RSVP for the event here! We will be sending out the Zoom link to all paid members before Friday, 10/22. If you’d like to become a member, you can do so by going to the event page SFR-NORD Membership Dues.

Any questions? Please contact our SFR President, Shoshana Cohen, at scohen20@students.kgi.edu.