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SFR-NORD | General Meeting #5

Microsoft Teams

Please join us in welcoming our final virtual speaker for the school year on Friday, April 14, from 12-1 p.m., Dr. Pankaj Agrawal, who goes by some of these amazing titles: Chief of Neonatology at the University of Miami and Jackson Health Chair in Project Newborn Professor of Pediatrics and Genetics About our speaker: My […]

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KGI’s 16th Annual Rare Disease Day 2023!

Microsoft Teams

What is Rare Disease Day? National Rare Disease Day is annually celebrated on February 28. Learn more: rarediseaseday.org Please join us in celebrating Rare Disease Day on Saturday, March 4, virtually through Microsoft Teams. Don't forget to click here to RSVP to receive an invitation! The event will begin at 10 AM.  We'll be joined […]

SFR-NORD: General Meeting #4

Microsoft Teams

Want to learn more about sickle cell disease and its impacts on children and their families, or maybe even how to start a foundation for rare diseases? Dreamsickle Kids Foundation was the first sickle cell organization founded in Nevada by our invited speaker, who is both a mother and the executive director. Join SFR-NORD in […]

Students for Rare NORD & Data Science Club – General Meeting #3

Microsoft Teams

Please join us in welcoming Amanda Scull, who will be our guest speaker in a joint club meeting between SFR-NORD and the Data Science Club. Amanda is a research project manager at NORD working on their Rare Disease Cures Accelerator - Data Analytics Platform (RDCA-DAP). This is an FDA-funded initiative! Join us to hear more […]