In this week’s episode, KGI President Sheldon Schuster chatted with Peter Saltonstall, the President and CEO of the National Organization for Rare Disorders – also known as NORD.
Peter joined NORD in 2008 after having served for more than 30 years as a senior executive in both for-profit and not-for-profit healthcare environments.
Under his leadership, NORD has maintained the integrity of the Orphan Drug Act while forging new relationships between the patient community and the Executive branch, Congress, HHS, FDA, NIH, Social Security Administration and CMS; as well as with drug and device companies, and with the medical, academic, and investment communities. His efforts to build collaborations stems from his view that advances for the rare disease patient can be achieved best through joint efforts. Today he continues to be one of the country’s lead voices on rare disease issues to industry, FDA, Congress, and the Government.